News from the TSSS
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Pow Health is a new social website to help people connect with others managing Turner syndrome and other conditions.
Turner Syndrome Support Society [TSSS] has partnered with Pow Health, a free online service to help manage all of your family’s health in one place; record your appointments, medicines, symptoms, and much more. Use it if you want to stay a little healthier or to manage a long-term condition.
You can also meet lots of people managing similar conditions. For every new registration, when you select Turner Syndrome Support Society [TSSS], we will get £1 from our partner. By joining you are helping the TSSS raise awareness about Turner Syndrome and we will automatically receive a £1 donation.
So please help us and yourself by joining Pow Health at http://www.powhealth.com. The site also helps individuals and families manage all of their health in one place, so you can record your appointments, track your height and monitor all your health indicators. These details can be shared easily with your doctor at any time.
This is a completely free service, so give it a try.
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We would grateful if you could complete our survey and share it with other parent carers. Thank you for helping us.
Counting the Costs 2014: Help Contact a Family build the biggest ever picture of family finances.
Thousands of families with disabled children and young people have already completed the Counting the Costs 2014 survey and Contact a Family are extremely grateful to everyone who has helped.
However, as all the political parties draw up their manifestos ahead of the general election in May 2015, it’s never been more important for family members who care for children and young people with additional needs to take part in this important research. By filling out the survey together we will can discover the true picture of family finances, the cost of living crisis and impact of welfare reforms affecting disabled children and their carers everyday across the UK.
The survey which should not take more than 20 minutes is open until mid June 2014.
Completing the survey here https://www.surveymonkey.com/s/CTC2014
If you would like a hard copy of the survey or help completing the survey please call Contact a Family on 020 7608 8742.
