Welcome to the TSSS (UK)

SUPPORT FOR WOMEN AND GIRLS WITH TURNER SYNDROME
The Society provides accurate and up-to-date information on Turner Syndrome and the many aspects of living with the condition on a daily basis. The TSSS is run by volunteers all closely involved with Turner Syndrome. Membership is not compulsory but offers further benefits and the modest annual fee enables the Society to continue to offer support to others. Please JOIN or DONATE.

  • Turner Syndrome is a chromosome abnormality affecting only females, caused by the complete or partial deletion of the X chromosome.
    It should be emphasised that each girl/woman with TS is an individual and what is relevant to one is not necessarily relevant to another.
    There are a number of treatments available to those with TS, and each girl/woman should be treated according to her individual needs.
  • Our dedicated YouTube channel will provide answers to many of your questions about Turner Syndrome and living with the condition.
    The TSSS is delighted with the continued success of the new website and social media campaign called "Missing an 'X'".
    It is important that all members know that girls with TS are entitled to Growth Hormone treatment thanks to the TSSS.
  • The Society offers access to information and friendly advice to women and girls with TS.
    The ASPECTS newsletter is an important communication source for all TSSS members.
    The TS International Group aims to improve knowledge and understanding about TS worldwide.
  • A wide range of publications covering TS, many of which are available for free download.
    A series of informative fact sheets which are available in printed format or free PDF download.
    To help open, honest and informative conversation about pregnancy and childbirth.
  • We now have 26 friendship groups around the UK and Ireland where members can meet socially.
    The society organises events including TS open days, medical seminars and an annual conference.
    The annual TS awareness week is used to raise greater awareness of TS and related issues.
  • Keep up to date and chat with friends on our member only Facebook group.
    Don't miss any of the latest news from TSSS by following us on X (formerly Twitter).
    Checkout the Society's latest posts on Instagram and follow us for more.
  • Membership of the Society is GBP 30 (UK) per annum (overseas GBP35) and provides many benefits.
    Your donations enable the TSSS to continue to offer support to those with TS and their families.
    You can also donate to the Turner Syndrome Support Society via our dedicated JustGiving page.
  • Collect free donations for TSSS every time you shop. It doesn't cost you a penny extra.
    Simply use an empty tube of Smarties, fill them with 20 pence pieces and raise £10 per tube!
    Simply use an empty tube of Smarties, fill them with 20 pence pieces and raise £10 per tube!

What is Turner Syndrome?

MORE FROM THE TSSS

  • Our online shop features TSSS goodies, clothing, jewellery and publications for adults and kids.
    Shop online
    We have sourced a company that will be able to assist members with most insurance needs. Read more
    We now have 26 friendship groups around the UK and Ireland. Join a group

    Helpline 0300 111 7520
    Mon-Fri 9am - 5pm: a mobile number is on the answering machine if your call is urgent.
  • The 2024 annual conference at our new venue, Yarnfield Park will be held from 11 to 13 October.
    The latest in our series of free downloadable fact sheets covers healthy living with TS.
    The TSSS is delighted with the continued success of the “Missing an X” campaign.

    TSSS is proudly affiliated with the Society for Endocrinology,
  • If your child is about to start growth hormone treatment, she may be able to take part in new research.
    A new trial to determine the relative effectiveness of hormone replacement therapy (HRT).

Diary dates

20 Apr 2024
12:30PM -
Devon group meet-up
27 Apr 2024
11:00AM - 04:00PM
Wales open day, Bridgend
12 May 2024
11:00AM -
Home Counties meet-up
21 Jun 2024
12:00AM
TS awareness day

Join now

Join the TSSS today to enjoy the many benefits of membership and support our important work for girls and women with TS.

Donate

If you would like to send a donation to benefit the work of the TSSS please click the button below.