What the society provides

Whether you are the parent of a newly diagnosed daughter with TS, a teenager or adult woman with TS, or pregnant with an in-utero diagnosis that the child you are carrying has TS, the Turner Syndrome Support Society is there to help you. Sometimes all you may need is to hear a friendly voice or to have the listening ear of someone who understands what living day to day with TS is like. You may just want information about TS, or have specific questions.

This is the service that the Society aims to provide and if it cannot instantly provide an answer, it will certainly know someone who can. You may just want contact with another parent or adult with TS. By becoming a member, the TSSS can put you in touch with someone as close to where you live as possible or at least provide telephone or written contact via its contact network.

The TSSS is run by volunteers all closely involved with Turner Syndrome. Membership is not compulsory but offers further benefits and the fee enables TSSS to continue to offer support to others.

TS is a ‘cradle to grave’ condition and as such requires medical treatment throughout life. The Society actively promotes the setting up of ‘one stop’ adult clinics for those with TS and the smooth transition from paediatric to adult clinic for teenagers with TS. Enquiries about TS from health, education, social service and other relevant professionals are welcomed. Promoting greater awareness of all aspects of TS amongst the general population is one of the aims of the Society.

Membership benefits

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  • Information +Read More

    Information

    The Society produces a wide of informative booklets, guides and fact sheets on all aspects of Turner Syndrome and living with the condition. Many are free of charge to download while others may be purchased in hard copy format from our online shop.
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  • AspecTS newsletter +Read More

    AspecTS newsletter

    Members of the Society receive regular copies of ASPECTS, the TSSS newsletter. The title of the newsletter has been chosen to reflect its intention to cover all aspects of TS from day to day living, medical issues, research, education, social issues and more.
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  • Friendship groups +Read More

    Friendship groups

    Groups offer access to a network for social contact with others who share the same interest and concerns. We now have 27 friendship groups around the UK and Ireland which arrange regular events for members to meet in a friendly, social setting.
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  • Annual conference +Read More

    Annual conference

    The TSSS holds an annual conference and open days, some with a theme, but always with a social element. Experience has shown that an important need for those with TS and their families is to have contact with others who share their experiences.
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Counselling Sessions for members of the Turner Syndrome Support Society UK

The Turner Syndrome Support Society UK [TSSS] is delighted to offer members of the society the opportunity to benefit from counselling with Moya Fletcher. These sessions will be one-to-one with Moya via zoom and in confidence. We have now lost our funding for this programme. However, we are seeking future funding. We can continue to fund eight sessions per member, for a small number of members on a first come first served basis. We are very pleased to be able to offer a service that will directly benefit many members of the TSSS.
Here are a few quotes from our evaluation forms: "I just wanted to say how positive L has become since having her session with Moya. She has started to make more positive statements."
"Mum and I both agreed how nice it was speaking to Moya during our sessions we both learnt meditation exercises that we will be able to use both now and, in the future."
"I felt Moya had a better understanding of me and how my mind is due to her knowledge of TS which is unique to any other counsellor."

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