The TSSS UK is pleased to share with you the details about I-TS Registry.

Over the last few years, the registry platform that is used for I-DSD and I CAH registries was also beginning to be used to enter cases of Turner Syndrome. To facilitate this further, a new module for TS was created and is now live.

The I-TS website can be reached via https://sdmregistries.org/

Please do have a look at the patient information sheets and consent forms for TS if your doctor asks you to enrol, you will know what it is about. If you would like your data entered, please download the consent form and send it to your doctor and ask them to add your details to the register. Or complete the form on the website https://sdmregistries.org/registering-yourself/

There have already been some TS projects published https://sdmregistries.org/research-output/

The benefits of these registries will be invaluable to the future care of those with TS. Common themes will emerge, leading to new research being carried out in many different areas. So much potential for the future. We will update you as things progress.