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Welcome to the TSSS (UK)

SUPPORT FOR WOMEN AND GIRLS WITH TURNER SYNDROME
The Society provides accurate and up-to-date information on Turner Syndrome and the many aspects of living with the condition on a daily basis. The TSSS is run by volunteers all closely involved with Turner Syndrome. Membership is not compulsory but offers further benefits and the modest annual fee enables the Society to continue to offer support to others. Please JOIN or DONATE.

  • What is TS?
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    What is TS?
    Turner Syndrome is a chromosome abnormality affecting only females, caused by the complete or partial deletion of the X chromosome.
    What is TS?
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    Living with TS
    It should be emphasised that each girl/woman with TS is an individual and what is relevant to one is not necessarily relevant to another.
    What is TS?
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    Treatment
    There are a number of treatments available to those with TS, and each girl/woman should be treated according to her individual needs.
  • FAQ
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    FAQs
    Our dedicated YouTube channel will provide answers to many of your questions about Turner Syndrome and living with the condition.
    Missing an X
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    Missing an 'X'
    The TSSS is delighted with the continued success of the new website and social media campaign called "Missing an 'X'".
    What is TS?
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    Growth hormone treatment
    It is important that all members know that girls with TS are entitled to Growth Hormone treatment thanks to the TSSS.
  • Read More
    Advice and support
    The Society offers access to information and friendly advice to women and girls with TS.
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    Newsletter
    The ASPECTS newsletter is an important communication source for all TSSS members.
    Website
    International
    The TS International Group aims to improve knowledge and understanding about TS worldwide.
  • Read More
    Publications
    A wide range of publications covering TS, many of which are available for free download.
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    Fact sheets
    A series of informative fact sheets which are available in printed format or free PDF download.
    Read More
    Bungle pack
    To help open, honest and informative conversation about pregnancy and childbirth.
  • Friendship groups
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    Friendship groups
    We now have 28 friendship groups around the UK and Ireland where members can meet socially.
    Events
    Events diary
    Events
    The society organises events including TS open days, medical seminars and an annual conference.
    TS Awareness Day
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    TS awareness day
    The annual TS awareness week is used to raise greater awareness of TS and related issues.
  • Guide
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    Guide
    Check out our essential guide to using social media to promote the TSSS.
    Facebook
    Join group
    Facebook
    Keep up to date and chat with friends on our member only Facebook group.
    Instagram
    View posts
    Instagram
    Checkout the Society's latest posts on Instagram and follow us for more.
  • JOIN TSSS
    Join the TSSS
    Membership of the Society is GBP 30 (UK) per annum (overseas GBP35) and provides many benefits.
    DONATE NOW
    Donate to the TSSS
    Your donations enable the TSSS to continue to offer support to those with TS and their families.
    Donate
    JustGiving
    You can also donate to the Turner Syndrome Support Society via our dedicated JustGiving page.
  • Sign up
    easyfundraising
    Collect free donations for TSSS every time you shop. It doesn't cost you a penny extra.
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    Give it up, give it in
    Donate a regular amount each month by giving up a coffee, a meal deal or takeaway!
    Shop now!
    Online TSSS shop
    Buy online from the wide range of goodies, clothing, jewellery and publications.

What is Turner Syndrome?

MORE FROM THE TSSS

  • Counselling for members
    TSSS is delighted to offer members the opportunity to benefit from counselling with Moya Fletcher.
    Emma Woods Fund
    A fund in memory of Emma Woods which aims to raise awareness of Turner Syndrome.
    Latest podcast
    Tune in to Spotify to listen to Emily Seymour's latest Turner Syndrome, Talk and Tea podcast!

    Annual conference
    Booking is now open for the TSSS annual conference in Keele, October 2026.

  • EU Clinical Trials
    We are happy to share information about Clinical Trials taking place in the EU for your information.
    POISE
    A new trial to determine the relative effectiveness of hormone replacement therapy (HRT).
  • Online TSSS shop
    Our online shop features TSSS goodies, clothing, jewellery and publications for adults and kids.
    Shop online
    Insurance services
    We have sourced a company that will be able to assist members with most insurance needs. Read more
    Join a friendship group!
    We now have 26 friendship groups around the UK and Ireland. Join a group

    Helpline 0300 111 7520
    Mon-Fri 9am - 5pm: a mobile number is on the answering machine if your call is urgent.

Diary dates

16 Oct 2026
02:00PM -
Annual conference
04 Dec 2026
12:00AM
Ladies with TS Xmas party and spa weekend
View Full Calendar

Join now

Join the TSSS today to enjoy the many benefits of membership and support our important work for girls and women with TS.
JOIN TSSS

Donate

If you would like to send a donation to benefit the work of the TSSS please click the button below.
DONATE