Welcome
The Society provides accurate and up to date information on Turner Syndrome and the many aspects of living with the condition on a daily basis. We hope you find our website useful and friendly.
Information about our forthcoming open days in Bolton (Greater Manchester) and Bridgend (South Wales) and our Family Fund Day in Glasgow:
Bolton open day
Family fun weekend, Glasgow
Read the press release from the Prescription Charges Coalition
Ladies get-together at Cadbury World, Saturday 11th May 2013. Contact Hayley Cleaver 07763 606597 for details. Turner Syndrome Lifelong Guidance & Support
Everything you need to know about Turner syndrome. 100 pages containing as many aspects as possible of living daily with the syndrome, from prenatal diagnosis through to recommended health checks for adult women with TS. Helpful tips for parents and teachers, information on footcare and personal experiences of life with TS and much, much more.
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Fiona, one of our members, recently took part in a video about managing her Turner Syndrome.
We would like to thank Fiona for assistance it is very much appreciated. She has done an excellent job we are very proud of her contribution to the project.
We would like to thank Genetic Alliance UK for putting together this excellent project.
Please click on this link and view the video.
The Society provides accurate and up to date information on Turner Syndrome and the many aspects of living with the condition on a daily basis. We hope you find our website useful and friendly.
The following description of Turner Syndrome (TS) and explanation of some of the issues involved in living with the condition are not definitive and a doctor or endocrine specialist should always be consulted whenever a diagnosis of Turner syndrome has been given.
The Turner Syndrome Support Society [UK] and other International Turner syndrome support groups can help with practical information on living daily with TS and can in most cases offer contact with other girls and women with TS and their families.
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There are a number of treatments available to those with TS, and each girl/woman should be treated according to her individual needs.
It should be emphasised that each girl/woman with TS is an individual and what is relevant to one is not necessarily relevant to another.
Membership of the Society is GBP 30 (UK) per annum (overseas GBP35) and provides many benefits. We are also happy to receive donations which enable the TSSS to continue to offer support to those with TS and their families, help us to create better awareness of TS amongst health professionals and the general public and to provide information on all aspects of living daily with TS to those who need it. You can also donate to TSSS by post using
our downloadable
form or via Just
Giving if you prefer. |
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