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Contact a family
The only UK-wide charity providing advice, information and support to the parents of all disabled children.
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Genetic Interest Group
A national alliance of patient organisations with a membership of over 130 charities which support children, families and individuals affected by genetic disorders.
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Harlow Printing
Produce UK growth charts and UK Turner Syndrome growth charts.
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British Society for Paediatric Endocrinology and Diabetes
Helping support children with endocrinological disorders and diabetes mellitus.
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The Site
A one-stop advice and information website where 16-24 year-olds can find support and guidance on a range of issues. We’ve also got an askTheSite service where young people can get expert answers to their questions, and a vibrant online community.
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Education Bulletin
I was first inspired to set up a magazine three years ago while I was fighting the LEA to secure a statement and school placement for my son John. I felt that there had to be an easier way for parents to access help and advice.
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NHS Low Income Scheme
The TSSS recognize that many women who have TS are having to pay for their prescriptions. The TSSS is a member of the Prescription Charges Coalition, together with other support groups, we are working to ensure the Health Service understand how difficult it is for patients who have long term medical conditions to meet the prescription charges. The following link may offer you some help.
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Netbuddy
Netbuddy is an award-winning site for swapping practical tips and information on all aspects of supporting people with learning disabilities.
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