Welcome
The Society provides accurate and up to date information on Turner Syndrome and the many aspects of living with the condition on a daily basis. We hope you find our website useful and friendly.
Irish open day
Click for details of the TSSS and TCGI open day in Newry on Saturday 25 February 2012.Download a booking form for the Irish Open Day.
Conference 2012
The 2012 Annual Conference is at the Park Hall Hotel, Chorley on 12-14 October 2012.International conference
The 8th International Conference will be held in Japan this year from 23rd to 25th of November 2012. The Japanese group have been working hard to put together an interesting programme. Anyone interested in attending the conference should keep a check on the conference website details below. If you are interested in attending please let Arlene know turner.syndrome@tss.org.uk so that she can keep you informed and up to date. The TSSS are hoping to send a delegation to the conference. http://www.turner-japan2012.orgChristmas party
Story and photos from our 2011 Christmas party in County Durham.Masters Award
Nominations are now invited for the 2012 Keith & Marian Masters Award.For further information and a nomination form please click here
Living with TS
Fiona, one of our members, recently took part in a video about managing her Turner Syndrome.We would like to thank Fiona for assistance it is very much appreciated. She has done an excellent job we are very proud of her contribution to the project.
We would like to thank Genetic Alliance UK for putting together this excellent project.
Please click on this link and view the video.
2nd edition book
Turner Syndrome Lifelong Guidance & SupportEverything you need to know about Turner syndrome. 100 pages containing as many aspects as possible of living daily with the syndrome, from prenatal diagnosis through to recommended health checks for adult women with TS. Helpful tips for parents and teachers, information on footcare and personal experiences of life with TS and much, much more.
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What is TS?
The following description of Turner Syndrome (TS) and explanation of some of the issues involved in living with the condition are not definitive and a doctor or endocrine specialist should always be consulted whenever a diagnosis of Turner syndrome has been given.The Turner Syndrome Support Society [UK] and other International Turner syndrome support groups can help with practical information on living daily with TS and can in most cases offer contact with other girls and women with TS and their families.
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Treatment
There are a number of treatments available to those with TS, and each girl/woman should be treated according to her individual needs. TS is a ‘cradle to grave’ condition and as such should be treated throughout life in a variety of ways. The girl/woman with TS should be under the care of an endocrinologist [doctor specialising in hormones], initially a paediatric endocrinologist followed by attendance at an Adult TS clinic.
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Living with TS
It should be emphasised that each girl/woman with TS is an individual and what is relevant to one is not necessarily relevant to another.Some babies have feeding problems or speech problems, and a speech therapist can help with both.
Some young girls have behavioural difficulties; this could be due to difficulty in concentrating, spatial awareness or hearing problems. Ask your GP, Health Visitor, Specialist or the TSSS for more information.
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How to join or donate
Membership of the Society is GBP 20 (UK) per annum (overseas GBP25) and provides many benefits. We are also happy to receive donations which enable the TSSS to continue to offer support to those with TS and their families, help us to create better awareness of TS amongst health professionals and the general public and to provide information on all aspects of living daily with TS to those who need it. Read More
Donate to the TSSS
You can also donate to TSSS by post using
our downloadable
form or via Just
Giving if you prefer. |
Fundraising ideas
Click the wheel for lots of ways to raise funds for the Society!Help keep our costs down!
The TSSS is a small charity and, although very happy to send out information on Turner Syndrome to all those who request it, does not have the funds to do this for free.When requesting information please make a donation to cover the cost of photocopying and administration. Thank you.
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The Society provides accurate and up to date information on Turner Syndrome and the many aspects of living with the condition on a daily basis. We hope you find our website useful and friendly.
Girls and women with TS and their parents often find that what they need most is contact with others in the same situation. When you join the Society we can offer you a network for social contact with people who share the same interests and concerns. We are also happy to help health, education and other professionals and anyone who cares for someone with TS. |